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Childhood Apraxia of Speech Awareness Walk/Walk for Ethan

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Event Details

Date(s) & Time(s)::

May 24, 2014 at 9:00 AM until 4:00 PM

Location: Physique 321-01 South Lincoln Jerome Idaho

Phone: 208-490-2335

Email: gsabey79@gmail.com

Link: http://www.gofundme.com/8mwrt8

Event Description

Physique's walking group, “Ready Set Go” will walk for Ethan and celebrate our first ever local Apraxia awareness day on May 24th 2014. Apraxia awareness day promotes awareness about childhood Apraxia of speech and gives you a look into a child's life that is living with CAS. All proceeds will go to Ethan, which will help him get the technology he needs for distance SLP services and to a National Conference in Tennessee to meet with specialists in the area of CAS. You do not have to attend to donate or pledge.
“Apraxia is among the most severe speech and communication problems in children. Affected children have difficulty planning and producing the precise, highly refined and specific series of movements of the tongue, lips, jaw, and palate that are necessary to produce clear, intelligible speech.” (CASANA)
Children with CAS generally have a good understanding of language - They know what they want to say - but have difficulty learning or carrying out the complex movements that underlie speech.
Ethan is 3 yrs. old and lives with CAS. Diagnosed at an early age, he attends speech therapy once a week although his diagnosis requires intensive treatment 5 days a week. Due to Ethan's rural living his parents drive 225 miles round trip every Wednesday to get him the services he needs. As you can imagine, this is a difficult yet rewarding task. The family is working with their SLP to provide services online and with different technological applications. This requires an iPad which is compatible to the applications used by his SLP. Ethan's parents are raising money that will allow them to travel to Tennessee in July to attend the national conference on CAS and meet with specialists in the field of CAS. The proceeds will also assist in purchasing need technologies for Ethan’s therapies.

"This conference is so important to Ethan's progress, we want to make sure he gets all the help and resources he needs to succeed in the community and in school," expressed his mother Genevieve.
These children must work and struggle so very hard just to learn a skill - speaking - that comes effortlessly to other children.
Apraxia awareness day will include a brief question and answer seminar by a speech and language pathologist, a personal testimony from a family living with CAS and a community walk in support of those faced with CAS.
This event is for the entire community supporting families and caregivers. Walking for Ethan registration opens today and is $15 for general public and $5 for students. All donations and pledges will be greatly appreciated.
Q&A seminar begins at 9:00 am Saturday May 24th
Community walk begins at 10:00 am Saturday May 24th beginning and ending at Physique in Jerome, with food, games, raffles, prizes and lots of fun to follow. We look forward to walking for Apraxia and Ethan.
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