Girl uses lemonade stand to raise awareness about albinism

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IRON MOUNTAIN, Mich. (WLUC) - - Rylee Goudreau is taking it into her 5-year-old hands to raise awareness about albinism.

According to the National Organization for Albinism, this genetic disorder only affects one in 18,000 people in the U.S. People diagnosed with it lack pigment in their hair and skin.

"There are only a small amount of people in the Iron Mountain-Kingsford area and I don't know any farther than that who have albinism, even the lowest form to the highest form of albinism," Rylee's mom, Christina Ureta, said. "We wanted to raise awareness for that."

To raise awareness the family will run a lemonade stand on June 13th, which is known worldwide as Albinism Awareness Day.

"I'd rather have people know that she has albinism and know that she's not extremely white haired and pale skin, but that she's Rylee and she has albinism," Ureta said.

Lemonade only will cost a quarter and the family will donate all proceeds to http://www.standingvoice.org.

"It gives the money to people in Tanzania. It gives them sunscreen, sunglasses, hats," said Ureta.

Rylee and her family invited everyone out to their house for the lemonade stand to get to know them and her better.



 
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